The “Dr. Nina Davies Epilepsy Foundation” was the natural outcome of two major themes in our lives. The first was our daughter, Dr. Alfonsina (Nina) Quintana Davies, who had epilepsy from birth. We three, Nina, her mother and father, were closely knit because of her disorder. We lived it day in and day out, for 52 years. We suffered with our daughter and fought with her to get the best and latest treatments, be it a diagnostic procedure, a doctor, a new medication and ultimately two brain surgeries.
While on this journey of 52 years, we realized that we were not alone, that many other families were moving in parallel worlds. Our life was consumed with our daughter’s survival, none the less, we often spoke of a plan to work and help those with the same problems that we and our Nina were facing. This is how a foundation ultimately came into being.
The mission of the foundation will be to help and promote empathy for those who suffer this devastating disease. It will also help and bring hope for a better future for patients and their extended families.
The mission of the Dr. Nina Davies Epilepsy Foundation is to improve the lives of those afflicted with epilepsy through increased research efforts, a better treatment modality and the elimination of the stigma and prejudice that surrounds this disease in all facets of public life.
The Goals of the foundation are three fold and simple:
- To increase the amount of research that is being done in relation to the treatment and basic mechanisms of epilepsy.
- To provide a treatment program that will not only treat the symptoms of the disorder, but provide psychosocial help in the lives of the patients and their families.
- To create EMPATHY for those with epilepsy.*
*Empathy is the experience of understanding another person’s condition from their perspective. You place yourself in their shoes and feel what they are feeling. Empathy is known to increase prosocial (helping) behaviors. Psychology Today)