July 2014 Newsletter

THE MISSION of the Dr. Alfonsina Q. Davies Epilepsy Foundation is to improve the lives of those afflicted through increased research efforts, a better treatment modality and the elimination of the stigma and prejudice that surrounds this disease in all facets of public life.

Give a Gift of Life and Health. Please DONATE WHAT YOU CAN for those who are suffering and dying daily from this horrible disease. Anyone at any age can have a seizure!!!

Epilepsy = Pain, Isolation, Stigma

HIDING FROM THE WORLD -DISPAIR,SHAME

In the June Issue, we provided background on the very serious non medical problems that people with epilepsy face.

The pain, isolation, stigma, prejudice, bullying and discrimination take their toll on the afflicted and his family. The painful cries of those who suffer from seizures are frequently found in the social media pages such as Twitter or Facebook.

Yet, there is no help. The government funding for research and treatment is woefully inadequate or non existent. Health Care Insurance program across the board do not provide for the needed psychosocial services.

Even if you do find a psychologist, none, and let us emphasize, none of them have interned in a facility that specifically treats those with epilepsy, and thus you have a dismal shortage of adequately trained individuals and an absolute lack of funding for the psychosocial treatment for individuals afflicted and their families. Just imagine, one of our soldiers after losing a leg, being sent home without any kind of rehab. This is what is happening to those undergoing brain surgeries for epilepsy or being treated with drugs.

This is why we created the foundation and why we are soliciting donations for the “The Dr. Nina Davies Epilepsy Treatment Center” WHO CAN NOT AFFORD EVEN A $20 DONATION?????

Help for those with Epilepsy!

We have asked Dr. Joel F. Wade, who has an interest in working with those with epilepsy, to contribute an article for us. It is appropriately titled “Hidden Strengths”. He is a psychologist and a “Life Coach” working to help people find happiness. “Happiness is not something that you have, it’s something that you do.” You can find him by clicking on the link: Dr. F Joel Wade

HIDDEN STRENGTHS

Joel F. Wade, Ph.D.

It’s natural and understandable when we are faced with psychological or emotional problems, to see them as purely negative; as things to be gotten rid of. But there’s more to it than that.

Nobody who is depressed wants to be depressed. Nobody who feels anxiety wants to feel anxiety. Nobody who has impulse control problems; or obsessive/compulsive urges, or overwhelming emotions, or post-traumatic stress disorder wants to have to deal with the symptoms, the anguish, the embarrassment, or the pain of these issues.

But we must. The simple fact of life is that if we are faced with such troubles, we have to deal with them. No less than we have to deal with any physical ailments, or financial struggles, or relationship issues.

What goes on within our psychological/emotional world is no less imperfect and fallible than any other element of life. What makes it so difficult is that we can experience such troubles as not just physical or circumstantial issues, but as moral issues.

Someone suffering from any of the psychological/emotional ailments can feel, not only is something wrong, but “something is wrong with me.” It can be very tricky to untangle that sort of moral judgment from the process of getting help for such ailments, and for many years it was seen as a sign of weakness to see a psychotherapist, or a pastor, or a counselor, for assistance in dealing with such troubles.

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