March 2014 Newsletter

Donations to Endowed Chair reach over $875,000

Endowment reaches over $800,000This may sound like a lot of money, and it is. However doing basic research in the cause and treatment of epilepsyis extremely expensive. As you read in our last newsletter the government gives very little to epilepsy even though it kills 50,000 Americans every year, as many as breast cancer.

Again we thank those of you who have helped us reach this milestone in our effort to fund the Dr. Alfonsina Q. Davies Endowed Chair for Research in Epilepsy. It is imperative that we continue this effort. If all those who open this message would give a small donation, what a difference it would make to so many children and adults afflicted by this condition.

Our next target is $1,000,000. We would like to raise the remaining $125,000 by December 31, 2013. All donations to the foundation, directed to the chair, are tax deductible. Please donate and help the forgotten millions out there. Donate

The Magic of Words. They can make you or break you!

Congratulations to the Korean Epilepsy Community for their valient work in helping to remove or reduce the stigma of epilepsy in their country. Those who suffer seizures not only have to deal with the disease but also have to face daily discrimination, stigma and prejuice. The latter causes a psychosocial trauma which is seldom addressed.

The Korean name was officially changed to noi-jeon-jeung meaning cerebroelectric disorder. This is the scientifically descriptive name that is neutral and carries no associations that would affect those with the illness. The Hospital Authority of Hong Kong, China, successfully changed the name in 2010.

Formerly the Korean word for epilepsy had very negative connotations that supported the belief of many that the disease “was associated with religious experiences and even demonic possession”. In most asian countries, “epilepsy” translated as “mad pig” or “madness”. In some cultures, persons with epilepsy have been banned from public buildings, not allowed to marry, imprisoned, or even sterilized. The United States in not exempt from such practices. Source: Epilepsia, January 2014

Quick notes for March

FREE Download of the book, “Nina’s Courage in Epilepsy”, March 25, 26 and 27. On those three days, the price goes to $0.00. Download it now for $4.99. Don’t miss the opportunity to learn about this Coureageous individual. ALL PROCEEDS GO FOR RESEARCH IN EPILEPSY Download your Kindle Reading App here.

March 26, 2014 is Purple Day™ Yearly on March 26th, people and organizations in countries around the world are invited to wear purple and host events in support of epilepsy awareness. Do your part to help end the suffering of some 70 million individuals world wide who have epilepsy. Remember and Wear Purple. DONATE

The application period for the Endowed Chair is closed. The Evaluation committee is working and we should soon know the name of the first SCIENTIST TO HAVE THE PRIVILEGE AND HONOR TO BE APPOINTED to hold the Dr. Alfonsina Q. Davies Endowed Chair For Epilepsy Research at UCLA.

SLEDD, The rock band that has written the song about our Nina, will be appearing at the South by Southwest Conference in Austin Texas March 14. They will be highlighting the song about Nina “She Gave her Life to Safe a Life” The Studio Recorded version is amazing. The South by Southwest Conference is a multimedia event that attracts thousands of people to Austin each spring break, March 7-15, 2014. The three major themes are, Music, Film and Interactive. Quite an honor for SLEDD

Give a Gift of Life and Health. PLEASE Donate ALL YOU CAN FOR ALL THOSE WHO ARE SUFFERING AND DYING DAILY FROM THIS HORRIBLE CONDITION. ANYONE AT ANY AGE CAN HAVE A SEIZURE !!!!